tag:blogger.com,1999:blog-7462129981306834664.post7531484693944694406..comments2024-01-31T07:15:31.349-05:00Comments on Middle Age Mania: Married to the MonSter...Unknownnoreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7462129981306834664.post-26284038241617674502010-02-07T12:32:08.793-05:002010-02-07T12:32:08.793-05:00Wow,I'm totally with you.I'm 44 married 3 ...Wow,I'm totally with you.I'm 44 married 3 yrs my wife all ready had m.s when we met.She to is very stubborn!Pushes herself to hard.But I'm amazed at her determination and will to live life to it's fullest.I just think I can never complain because look what she has to deal with.It's encouraging to hear I'm not alone .johnroyhttps://www.blogger.com/profile/17910571846867874657noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-15369559202090936452008-08-28T19:48:00.000-04:002008-08-28T19:48:00.000-04:00You said it so well. Sometimes we find ourselves ...You said it so well. Sometimes we find ourselves frustrated with our caregiver for focusing on how MS affects them and not how it feels to go through it. It is good to be reminded that caregivers suffer too so we can remember to walk a mile in their shoes too.<BR/>ThanksDenver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-41664665182346700022008-08-28T13:43:00.000-04:002008-08-28T13:43:00.000-04:00Tricia,I came here from the MS Carnival and want t...Tricia,<BR/>I came here from the MS Carnival and want to say thank you for contributing. Everything you have said is what I feared most when I was diagnosed. I really was, and still am, worried about how my loved ones cope with my MS. <BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-5219759135262558182008-08-27T20:29:00.000-04:002008-08-27T20:29:00.000-04:00Tricia - What a beautifully written piece. My litt...Tricia - What a beautifully written piece. My little brother has MS. It sucks. I hate it. He had his first obvious symptom on September 11, 2001 as he stood in his 60th floor office of a bank in Manhattan and watched the twin towers collapse. One entire side of his face went completely numb. <BR/><BR/>He thought it was stress as his then girlfriend (now wife) worked two doors down from what is now known as ground zero. The events of that day would and did stress everyone there. But then the symptoms didn't go away. He went to the emergency room, then a regular doctor, then a neurologist where he got The News. <BR/><BR/>I really think (and dearly hope) that there will be a cure in our lifetime. There just has to be. This disease BITES. It takes away SO much. <BR/><BR/>Well, I didn't mean to rant. But I admire your husband for living with it. And I admire you for living with him. (I mean this with total respect to you both - there are many days when I KNOW that I get the admiration of others for living with my husband.)<BR/><BR/>One of these days I'm going to get off my ass and start fundraising for the MS Society. I really think that they need some serious funding and then they will find the cure. <BR/><BR/>Oy. I started ranting again, didn't I? OK. I'm going now. Really. Thanks for the wonderful piece. Loved it. Ok. Here I go....Bexhttps://www.blogger.com/profile/17157342348881579249noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-2360760593143704602008-08-22T15:12:00.000-04:002008-08-22T15:12:00.000-04:00Thank you for sharing this with us!Thank you for sharing this with us!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-77509992654842995512008-08-21T17:16:00.000-04:002008-08-21T17:16:00.000-04:00Oh my goodness Tricia, what a profoundly moving po...Oh my goodness Tricia, what a profoundly moving post... I believe that you have expressed much of what the spouse of a MS patient deals with, thinks about, and fears. God bless you for not only sharing this information with others, but in dealing with the MonSter that is affecting your husband, and is also affecting yours by proxy.<BR/><BR/>I too am on Tysabri therapy, having currently completed 24 Tysabri infusions. While I have not been able to experience some of the improvements that others have while on Tysabri therapy, I understand and accept the fact that most of my damage from prior relapses over the last 32 years is probably permanent. This is no ones fault, it's just the nature of the disease.<BR/><BR/>What I do focus on now is that I have not had one single relapses & no new lesions in over two years since being on Tysabri therapy, and my neurologist and I both believe that without Tysabri, I would be bedridden by now. Therefore, because my MS is now stable, my Quality of Life is vastly improved. I no longer dread waking up each day wondering what has MS taken from me now; Rather, I wake up with a renewed sense of hope, real hope, that I may once again regain some of what MS previously took from me...did I want more? Yes, in all honesty, yes I did...but I don't focus on the disappointments, I focus on the possibilities & hope that Tysabri has brought back to my life.<BR/><BR/>You stated, "I worry that he will cross over and become secondary progressive, if this happens there is no approved treatment"... this is not necessarily true Tricia, as I am Secondary Progressive <B>with</B> relapses. Most people do not realize that SPMS has two different categories: 1)with relapses (the semi-inflammatory stage) and 2) without relapses (the demyelinating stage).<BR/><BR/>Tysabri has kept my MS in the SPMS <B>with</B> relapses stage, and for that, I am <B>ever-soooooo grateful</B>. <BR/><BR/>I send all my very best to you Tricia and to your husband, including many, many, many support hugs for you both...Lauren :)Laurenhttps://www.blogger.com/profile/18373904711547103825noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-89015921719481965872008-08-21T09:34:00.000-04:002008-08-21T09:34:00.000-04:00You're a good wife and friend to your husband and ...You're a good wife and friend to your husband and I really admire you. Hang in there.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-85562167505598916632008-08-20T17:18:00.000-04:002008-08-20T17:18:00.000-04:00Tricia, thank you SO MUCH!!It's sometimes easy to ...Tricia, thank you SO MUCH!!<BR/><BR/>It's sometimes easy to forget that our loved ones suffer along with us and perhaps are cheated even more than we know. The MonSter is certainly a parasite, isn't it?<BR/><BR/>I'd like to share this in the next Carnival if that's okay with you.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-7462129981306834664.post-39789848103773634582008-08-20T16:15:00.000-04:002008-08-20T16:15:00.000-04:00I love you.I love you.Anonymousnoreply@blogger.com