Tuesday, May 20, 2008

Back on the Tysabri Wheel of Death...


We found a place that will do hubby's Tysabri on weekends or in the evening. Now we are like hamsters on a wheel running and running and running and getting nowhere. The insurance approval is not happening. This place gets the drug through our specialty pharmacy and so we're waiting for that to happen. People keep calling my husband and he is getting confused and frustrated. I now have to make phone calls to figure out what is happening and what he needs to do. I really wish they could follow instructions and call me in the first place.

Again with the martyr attitude too, he says to me "maybe I should just stop treating this and then no one will have to worry about it." If I could have reached a hand through the phone and smacked him I would have.

He has an appointment for Saturday morning IF we can get the drug from the pharmacy in time. If not he still has an appointment on Friday at 1pm for the old place.

Once we get him moved - he better not ask to move his treatment again, or he's on his own! ARGH!

4 comments:

verybadcat said...

Sorry, babe. That just sucks. I hope the drugs come through!

Jennifer McKenzie said...

UGH!!! I hope this gets better for you.

mdmhvonpa said...

Ack. Which is worse, the cure, the disease or the insurance!?

Kimberly said...

Hang in there, toots. I'm glad, at least, that you FOUND a place that could do it on the weekend!